The American Fibromyalgia Syndrome Association, Inc.

About AFSA
What is Fibromyalgia
Projects Funded
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AFSA is an all volunteer nonprofit organization dedicated to funding research that investigates the causes and treatments for fibromyalgia syndrome.

A 501(c)3 Nonprofit Charitable Organization.

Resources

ORGANIZATIONS AND LINKS:

International Association for CFS/ME (IACFS/ME)
27 N. Wacker Drive Suite 416
Chicago, IL 60606

(847) 258-7248

Website:  www.iacfs.net

A professional organization for physicians and individuals. Annual membership fee is $100.00 for researchers, clinicians, and therapists. For students, patients, and other interested individuals the annual fee is $40.00. Sponsors bi-annual physician/patient conferences on CFS/ME and FMS.


Fibromyalgia Network
PO Box 31750
Tucson, AZ 85751-1750

(800) 853-2929

Website: www.fmnetnews.com

Fibromyalgia Network produces the "Fibromyalgia Network Journal," monthly eNews Alerts, and other support and educational materials for an annual membership fee of $28.00. It maintains referral listings of support groups and health care providers for each state. A free information packet is available by writing, calling, or sending a self-addressed stamped envelope (42 cents postage) to FM Network. The packet contains a brochure on FMS/CFS, an order form for Membership, and other educational materials available for purchase, including:

  • Fibromyalgia Network Journal ($28.00)
  • Diet and Exercise Supplement ($10.00)
  • Relationships Supplement ($9.00)

Haworth Medical Press
10 Alice Street
Binghamton, NY 13904

(800) 429-6784

Website: www.haworthpress.com

Publisher of three peer-reviewed medical journals relating to MPS/FMS/CFS.

  • Journal of Musculoskeletal Pain - $75.00/yr
  • Journal of the Chronic Fatigue Syndrome - $60.00/yr
  • Pain and Palliative Care Pharmacotherapy - $45.00/yr

Men with Fibromyalgia
The author of this website feels that men have been "quiet too long." This site addresses various issues surrounding men and fibromyalgia. If you are a man with fibromyalgia or have a spouse or male friend with the illness, visit this website. Women always welcome.

Website: www.menwithfibro.com


Massachusetts CFIDS Association
PO Box 690305
Quincy, MA 02269-0305

(617) 471-5559

Website: www.masscfids.org

The Massachusetts CFIDS Association provides information and supportive services to help patients, their families and loved ones cope more effectively with CFIDS and FMS.


Fibromyalgia Information Foundation
PO Box 19016
Portland, OR 97280

Website: www.myalgia.com

Hosts patient conventions and offers excellent videos on exercise, stretching, and relaxation by Sharon Clark, FNP, Ph.D., and Robert Bennett, M.D.


Restless Legs Syndrome Foundation, Inc.
1610 14th St NW, Ste 300
Rochester, MN 55901

(877) INFO-RLS
(877) 463-6757

Website: www.rls.org

The Association publishes the Nightwalkers Newsletter and Medical Bulletin for $25.00.


To Your Health, Inc.
17007 E Colony Dr, Ste 107
Fountain Hills, AZ 85268

(800) 801-1406

Website: www.e-tyh.com

TyH provides a wide variety of mail-order nutritional supplements. They also publish a quarterly newsletter available for $25.00/yr, with all the latest information on new supplements.


Gero-Vita International
4936 Younge St
Toronto, ON M2N 6S3

(800) 406-1314

Website: www.gvi.com

Gero-Vita is an international chain that sells nutritional supplements. Once you place an order, you will automatically receive their full-color magazine which is published monthly.


PUBLICATIONS AND VIDEOS:

FMS Fact Sheet
Prepared by Kristin Thorson, President AFSA

Click here to open Fact Sheet (PDF)

Condensed information on FMS, including demographics, disability studies, research findings, the current status of NIH spending on the condition and more. In PDF format for easy printing, no reprint permission is required for the use and distribution of this document. If you do not have Adobe Acrobat Reader, it is free and can be downloaded by clicking below:


Fibromyalgia Network
Quarterly Journal
(800) 853-2929

This 20+ page quarterly Journal is available from the publisher. The cost is $28.00/yr.For more information visit www.fmnetnews.com.


Oregon Fibromyalgia Foundation Exercise DVDs
by Sharon Clark, FNP, Ph.D. and Robert Bennett, M.D.

Three DVDs available: Balance and Strength, Aerobic Exercises, and Stretching and Relaxation. $30.00 for the first DVD, $22.00 for all others (including postage and handling). Available at: www.myalgia.com.


Headache Help
by Laurence Robbins, M.D. and Susan S. Lang
Published by Houghton Mifflin Company
ISBN: 0-618-04436-1

This book is 288 pages. The cost is $15.00. Available through online bookstores.

Management of Headache and Headache Medications, Second Edition
by Lawrence Robbins, M.D.
Published by Springer-Verlag New York, Inc.
ISBN: 0-387-98944-7

This book is 296 pages. The cost is $53.95. Available through online bookstores.

Information on the Robbins Headache Clinic is at: www.headachedrugs.com


Fibromyalgia: Up Close and Personal
by Mark J. Pellegrino, M.D.
Published by Anadem Publishing
ISBN: 1-890018-50-3

This book is 424 pages. The cost is $24.50. Available though the OHIO Rehab Center at (330) 498-9865.


All About Fibromyalgia
by Daniel J. Wallace, M.D. and Janice Brock Wallace
Published by Oxford University Press
2001 Evans Rd
Cary, NC 27513

(800) 451-7556

This book is 272 pages. The cost is $30.00. For more information visit the publisher's
website: www.oup-usa.org.


Fibromyalgia
by Don L. Goldenberg, M.D.
Published by The Berkley Publishing Group

This book is 256 pages. The cost is $15.95. For more information visit the
publisher's website:
www.penguinputnam.com.


The Yeast Connection and the Woman
by William G. Crook, M.D.
Wellness Health and Pharmaceuticals
2800 South 18th Street
Birmingham, AL 35209
(800) 227-2627

This book is 731 pages. The cost is $17.95. For more information please contact the publisher.


CANADIAN REFERENCES:

FM-CFS Canada
For support groups and help throughout Canada, visit the FM-CFS Canada. Resources in English and French.

Website: www.fm-cfs.ca


MEFM
The Myalgic Encephalomyelitis and
Fibromyalgia Societies of BC

Box 462, 916 West Broadway Ave
Vancouver, BC V5Z 1K7
Canada

(604) 878-7707

Website: www.mefm.bc.ca

Publishes a quarterly newsletter for an annual membership fee of $15.00. Offers support group listings and other educational materials for sale or rent.


OTHER RESOURCES:

  • The Journal of SLEEP has a home page in which you may download interesting scientific abstracts pertaining to sleep research. Their site is: www.journalsleep.org
  • Headache Help - a website developed by Lawrence Robbins, M.D., a neurologist who runs a headache clinic in Illinois and who also suffers with chronic, daily headache pain. It is devoted to helping patients treat their headaches and to keep patients/physicians current on the latest remedies for migraine and tension-type headaches. This website is located at: www.headachedrugs.com

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The American Fibromyalgia Syndrome Association, Inc. (AFSA)
PO Box 32698, Tucson, AZ 85751 • Phone: (520) 733-1570 • Fax: (520) 290-5550
Federal Tax I.D. 77-0355224 • Copyright © 1998-2011

This site is provided for informational purposes only.
Patients should always consult their physician for medical advice and treatment.

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