ORGANIZATIONS AND LINKS:
International Association for CFS/ME (IACFS/ME)
27 N. Wacker Drive Suite 416
Chicago, IL 60606
A professional organization for physicians and individuals. Annual membership fee is $100.00 for researchers, clinicians, and therapists. For students, patients, and other interested individuals the annual fee is $40.00. Sponsors bi-annual physician/patient conferences on CFS/ME and FMS.
PO Box 31750
Tucson, AZ 85751-1750
Fibromyalgia Network produces the "Fibromyalgia Network Journal," monthly eNews Alerts, and other support and educational materials for an annual membership fee of $28.00. It maintains referral listings of support groups and health care providers for each state. A free information packet is available by writing, calling, or sending a self-addressed stamped envelope (42 cents postage) to FM Network. The packet contains a brochure on FMS/CFS, an order form for Membership, and other educational materials available for purchase, including:
- Fibromyalgia Network Journal ($28.00)
- Diet and Exercise Supplement ($10.00)
- Relationships Supplement ($9.00)
Haworth Medical Press
10 Alice Street
Binghamton, NY 13904
Publisher of three peer-reviewed medical journals relating to MPS/FMS/CFS.
- Journal of Musculoskeletal Pain - $75.00/yr
- Journal of the Chronic Fatigue Syndrome - $60.00/yr
- Pain and Palliative Care Pharmacotherapy - $45.00/yr
Men with Fibromyalgia
The author of this website feels that men have been "quiet too long." This site addresses various issues surrounding men and fibromyalgia. If you are a man with fibromyalgia or have a spouse or male friend with the illness, visit this website. Women always welcome.
Massachusetts CFIDS Association
PO Box 690305
Quincy, MA 02269-0305
The Massachusetts CFIDS Association provides information and supportive services to help patients, their families and loved ones cope more effectively with CFIDS and FMS.
Fibromyalgia Information Foundation
PO Box 19016
Portland, OR 97280
Hosts patient conventions and offers excellent videos on exercise, stretching, and relaxation by Sharon Clark, FNP, Ph.D., and Robert Bennett, M.D.
Restless Legs Syndrome Foundation, Inc.
1610 14th St NW, Ste 300
Rochester, MN 55901
The Association publishes the Nightwalkers Newsletter and Medical Bulletin for $25.00.
To Your Health, Inc.
17007 E Colony Dr, Ste 107
Fountain Hills, AZ 85268
TyH provides a wide variety of mail-order nutritional supplements. They also publish a quarterly newsletter available for $25.00/yr, with all the latest information on new supplements.
4936 Younge St
Toronto, ON M2N 6S3
Gero-Vita is an international chain that sells nutritional supplements. Once you place an order, you will automatically receive their full-color magazine which is published monthly.
PUBLICATIONS AND VIDEOS:
FMS Fact Sheet
Prepared by Kristin Thorson, President AFSA
Click here to open Fact Sheet (PDF)
Condensed information on FMS, including demographics, disability studies, research findings, the current status of NIH spending on the condition and more. In PDF format for easy printing, no reprint permission is required for the use and distribution of this document. If you do not have Adobe Acrobat Reader, it is free and can be downloaded by clicking below:
This 20+ page quarterly Journal is available from the publisher. The cost is $28.00/yr.For more information visit www.fmnetnews.com.
Oregon Fibromyalgia Foundation Exercise DVDs
by Sharon Clark, FNP, Ph.D. and Robert Bennett, M.D.
Three DVDs available: Balance and Strength, Aerobic Exercises, and Stretching and Relaxation. $30.00 for the first DVD, $22.00 for all others (including postage and handling). Available at: www.myalgia.com.
by Laurence Robbins, M.D. and Susan S. Lang
Published by Houghton Mifflin Company
This book is 288 pages. The cost is $15.00. Available through online bookstores.
Management of Headache and Headache Medications, Second Edition
by Lawrence Robbins, M.D.
Published by Springer-Verlag New York, Inc.
This book is 296 pages. The cost is $53.95. Available through online bookstores.
Information on the Robbins Headache Clinic is at: www.headachedrugs.com
Fibromyalgia: Up Close and Personal
by Mark J. Pellegrino, M.D.
Published by Anadem Publishing
This book is 424 pages. The cost is $24.50. Available though the OHIO Rehab Center at (330) 498-9865.
All About Fibromyalgia
by Daniel J. Wallace, M.D. and Janice Brock Wallace
Published by Oxford University Press
2001 Evans Rd
Cary, NC 27513
This book is 272 pages. The cost is $30.00. For more information visit the publisher's
by Don L. Goldenberg, M.D.
Published by The Berkley Publishing Group
This book is 256 pages. The cost is $15.95. For more information visit the
publisher's website: www.penguinputnam.com.
The Yeast Connection and the Woman
by William G. Crook, M.D.
Wellness Health and Pharmaceuticals
2800 South 18th Street
Birmingham, AL 35209
This book is 731 pages. The cost is $17.95. For more information please contact the publisher.
For support groups and help throughout Canada, visit the FM-CFS Canada. Resources in English and French.
The Myalgic Encephalomyelitis and
Fibromyalgia Societies of BC
Box 462, 916 West Broadway Ave
Vancouver, BC V5Z 1K7
Publishes a quarterly newsletter for an annual membership fee of $15.00. Offers support group listings and other educational materials for sale or rent.
- The Journal of SLEEP has a home page in which you may download interesting scientific abstracts pertaining to sleep research. Their site is: www.journalsleep.org
- Headache Help - a website developed by Lawrence Robbins, M.D., a neurologist who runs a headache clinic in Illinois and who also suffers with chronic, daily headache pain. It is devoted to helping patients treat their headaches and to keep patients/physicians current on the latest remedies for migraine and tension-type headaches. This website is located at: www.headachedrugs.com